Cushing’s and kidney cancer (renal cell carcinoma) patient, founder, owner and webmaster of Cushing’s Help and Support, web designer, piano teacher and mom.
I am a Cushing’s patient who has dealt with Cushing’s symptoms since 1983 (or earlier) and the aftereffects of pituitary surgery since 1987.
Because I had very little support for my symptoms, diagnosis and surgery, I decided to try to make things a little better for other patients and started a support site called Cushing’s Help and Support in 2000. The site has grown to astronomical numbers. This disease isn’t as rare as doctors have told us!
In 2006, I was also diagnosed with kidney cancer (renal cell carcinoma). My left kidney and adrenal gland were removed. Having an adrenal gland removed complicates my post-Cushing’s symptoms.
I am not planning to have any more rare and unusual diseases.
My entire (illness) bio to date can be found here: http://www.cushings-help.com/maryos_story.htm
BUT, this blog will try to celebrate the good things in my life, not the testing, the surgery, the endless doctors. This will be about traveling, friends, fun stuff and trying to live a good life, finally.