Tag Archives: Cushing’s

2015

So far this year its been mostly work, snow, ice, work…

I did get to go to a Rare Disease Conference at the NIH last month.  That was just a day trip but it was a good one.  I always like going back to NIH.  I spent so much time there when I was being diagnosed with Cushing’s and post-op that it feels like a second home to me.

We had lunch in the real cafeteria – more memories.  When I was an inpatient, my DH and young son would come visit most nights and we’d have a late dinner there.

Last November 30, my son and I got to play a 2-piano duo in the Steinway Hall Rotunda in NYC.  As it turned out, we were the last ever people to play there before they moved to a new location in Manhattan.

 

Steinway Hall, November 30, 2014

 

Here’s a brief video of him playing his solo and one of us playing 2-pianos:

 

 

 

We are currently getting ready to play a duet (1 piano) at the temporary location for Steinway in early June, 2015 …the same day we leave on a cruise to Bermuda.  Talk about a tight schedule!

After the November recital, we went to see the Intrepid in NY Harbor.  Across the water, a couple berths over I saw a cruise ship departing.  I didn’t know/didn’t care where they were going but I found out.

For Christmas, everyone’s gift was a cruise on the Norwegian Breakaway to Bermuda.  More on that later.

Also, this summer will be a trip to Scotland to see and hear the Edinburgh Tattoo.  This has been on my bucket list for a long time.  My grandfather was in the Black Watch and I just love to hear bagpipes. Even my cellphone ringtone is Scotland, the Brave.

A bit more about him here.

This weekend is a Handbell Festival in Maryland – kind of exciting, too :)

MaryOColorfulButterfly

 

Day Five, George Town, Grand Cayman, Cayman Islands – November 21

I woke up at 7:00 am and saw that we were getting close to shore – and there were a couple other ships close to shore.

Grand Cayman is a “tender” port, so we’ll anchor a ways out and take small tender boats into port.  Last time I did this, in January, it looked like a parking lot of boats out here.  We’ll see how it looks here later today.

People going on excursions go first, then we can get tender tickets.  I imagine if we go later in the day we won’t need those, but if we do, they’re in Topsiders on 12, mid.

The show tonight looks good – The Fantastic Flying Fingers of Piano Showman, Stephen Kane.  The description says “Forget your old piano lessons!  Stephen pushes the keys to their limits:  Jazz, ragtime, classical, the hits of Billy Joel and Elton John.  Exuberant playing and soulful vocals plus a few good laughs.”

Unfortunately, we’re going to miss that since it’s at 8:30 pm only.  Tonight is the night we have dinner with an ship’s officer in the Tsar’s Palace.  It might seem rude to say “Gotta Go!” in the middle of the meal.

(Note on 2/21/2014:  I just found out that Stephen Kane will be on our next cruise so we’ll get another chance to hear him!)

As predicted, after breakfast in the Great Outdoors, tender tickets were no longer needed.  We gathered up our stuff to take shopping and waited in line for the next tender.  On shore, we avoided “pirates” and other photo ops.

5 other ships in port today – 3 Carnivals, one other Norwegian (Pearl) and a Royal Caribbean.  All tendering folks to and from town.

We looked in the windows of the terminal stores, then kept walking out the gate to the main road along the harbor in George Town.  We looked in a couple jewelry stores and a Swatch store – Tom is still looking for a watch – but found nothing appealing in our price range.

We found the “Cariloo” store where everything is bamboo and Tom got another shirt.  He had bought one onboard the first sea day.  It does feel nice and soft but I didn’t want to get a Tshirt.  We ran into the “hot tub vet” and her mom and Tom mentioned Cushing’s again.  Maybe we’ll email later.  Or not.

Up the street to a Scotiabank where Tom enquired about opening a bank account.  Their dollar is more stable now than the US.

Back down to shopping – into DelSol.  I got another hat, this time with a butterfly that adds color when it is out in the sun.

A tshirt somewhere else, a bathing suit for Tom, some trinkets.

It was very hot and there were just too many people from all these ships so we crossed the street to go back to the ship and came across a small park.  The lookout station was in a small treehouse.

Back inside the terminal, we got a tote bag to carry all our swag, plus some wind chimes.

We had our first lunch onboard when we got back.  We took it to the Great Outdoors again.  Much nicer than sitting outside than in the Garden Cafe.

Walking, reading, writing, napping… tI had thought we might go in the hot tub/pool again but the afternoon disappeared.

Time to get ready for our dinner with an officer.  Dressed up and hustled down the Photo Gallery on 7, mid.  I thought we were going to have our picture(s) taken but it was really just a meeting place.

2013-11-22 18.05.04We got to our table in Tsar’s Palace.  Two others were already there, another Thomas and a Dr. Julie.  We had assigned seating so it was Sandra Franklin, Human Resources person, with a Tom on either side.

On my other side were 2 women who had been best friends since second grade, for about 50 years.  They talked about once a week but this was their first cruise without their families and their first non-Princess cruise.  The more talkative of the 2 was a photographer.

Dr. Julie was – oh yes – a veterinarian.  She seemed surprised that people got Cushing’s so we had more discussion about that.

This will be known as the Educating the Vets cruise.

It was an excellent dinner and we learned a lot about ship operations, NCL and more from Sandra.  Much of the crew here is from the Philippines but none had lost family members in Typhoon Halyan.  NCL offered support to all and made phone calls to check on family.

Sandra was originally from Guyana and now St. Lucia.  She has a daughter in college in NYC and thought that this would be a good job to have as an empty nester.  Sounds good to me, too!  I wonder if there’s much call for piano teachers onboard…

Walking around, changed clothes.

Chocolate Buffet night.  People lined up waiting.  We went in, got some pictures but it was just too crowded.

On our way out, we found the “Sugar-Free Chocolate Buffet”  Much fewer stuff by way fewer people.  So we got a few “healthy” items and went out to the Great Outdoors to indulge.  Maybe no sugar but I think that there was a bit of fat.

Walking, sitting by the pool, a bit of reading/writing.  I finished my book and started The Ocean at the End of the Lane: A Novel by Neil Gaiman

Today’s Stats:

Thursday, November 21st, 2013

Today’s Forecast:  Partly Cloudy 88F/31C

Sunrise: 6:38 am

Sunset: 5:48 pm

Arrival: 8:00 am

All Aboard: 3:30 pm

Follow

Get every new post delivered to your Inbox.

Join 773 other followers